I posted the following in response to an Emma Barnett piece. Emma is an inspirational campaigner on endometriosis and the frequently associated subfertility.
it still seems a relatively neglected disease complex by the NHS, as starkly illustrated by the dreadful waiting list figures for gynaecology services. My stepdaughter was (and continues to be) very badly affected and also had a torrid time with subfertility and IVF complicated by endometriosis cysts on her ovaries. Happily she has now two gorgeous children.
The NHS “service” was very poor, more shameful for me as a (now retired) NHS GP.
There may be some hope on the horizon with the advent of DCA, anti Interleukin 8 blocking antibody AMY109 (trial ongoing at Norfolk and Norwich University Hospital with encouraging early results), relugolix (alone or with additional progestogenic hormones) but NICE guidance updated this month seems to be strangely quiet on these treatments and whilst suggesting early investigation by ultrasound and MRI it is silent on the limited access to these scan technologies.
I hadn’t either until the MRI results, there’s so much vocabulary we don’t know in relation to women’s health. Thanks for sharing that article, I’ll have a read ❤️
When I started going through perimenopause and began trying to figure out how my birth control and my SSRI's impact this change, I was shocked to see how little information is out there. I shouldn't be shocked, I suppose, as I know that science has a long history of ignoring women's health but I still was surprised to see that this is still such a serious issue.
there's so little, and we've to be careful too that we find doctors who are specialists in the topics, some of what I've been told in the past was unfounded and in some ways, dangerous. I feel there's a shift lately, women are speaking up about their health, and it's no longer confined in our minds as something shameful. I hope you managed through that period and you're doing ok now
I am still trying to muddle my way through it, mostly by talking to older women friends. I did switch from a doctor that was super unhelpful and am happier with the new one …. happier but not happy or confident about them. Working on it.
I wish you the best with all of it, it’s a journey for sure, glad you’re learning from older women. It’s like going back to the wisdom of generations ago, trust the elders
Thank you for writing this but I’m sorry you know what I know x
I posted the following in response to an Emma Barnett piece. Emma is an inspirational campaigner on endometriosis and the frequently associated subfertility.
it still seems a relatively neglected disease complex by the NHS, as starkly illustrated by the dreadful waiting list figures for gynaecology services. My stepdaughter was (and continues to be) very badly affected and also had a torrid time with subfertility and IVF complicated by endometriosis cysts on her ovaries. Happily she has now two gorgeous children.
The NHS “service” was very poor, more shameful for me as a (now retired) NHS GP.
There may be some hope on the horizon with the advent of DCA, anti Interleukin 8 blocking antibody AMY109 (trial ongoing at Norfolk and Norwich University Hospital with encouraging early results), relugolix (alone or with additional progestogenic hormones) but NICE guidance updated this month seems to be strangely quiet on these treatments and whilst suggesting early investigation by ultrasound and MRI it is silent on the limited access to these scan technologies.
I'd never even heard of Adenomyosis until reading this article today and then a second essay about it popped up:
https://www.mumsmidlifecrisis.com/p/i-have-painful-adenomyosis-now-what
I hadn’t either until the MRI results, there’s so much vocabulary we don’t know in relation to women’s health. Thanks for sharing that article, I’ll have a read ❤️
When I started going through perimenopause and began trying to figure out how my birth control and my SSRI's impact this change, I was shocked to see how little information is out there. I shouldn't be shocked, I suppose, as I know that science has a long history of ignoring women's health but I still was surprised to see that this is still such a serious issue.
there's so little, and we've to be careful too that we find doctors who are specialists in the topics, some of what I've been told in the past was unfounded and in some ways, dangerous. I feel there's a shift lately, women are speaking up about their health, and it's no longer confined in our minds as something shameful. I hope you managed through that period and you're doing ok now
I am still trying to muddle my way through it, mostly by talking to older women friends. I did switch from a doctor that was super unhelpful and am happier with the new one …. happier but not happy or confident about them. Working on it.
I wish you the best with all of it, it’s a journey for sure, glad you’re learning from older women. It’s like going back to the wisdom of generations ago, trust the elders
absolutely